I just spoke with our son’s GI doctor in regards to the test results from his endoscopy. The biopsies show moderate to severe inflammation of his esophagus. Positive for EoE (Eosinophilic Esophagitis).
Not the results I was hoping for…but what I suspected all along.
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He will be starting a steroid (mixed with packets of splenda) today, once a day, that is swallowed to keep the inflammation down. He will also continue the ant-acid because it keeps the acid down which makes him more comfortable.
The doctor wants to see him again in six weeks, and wants another endoscopy in 8-10 weeks to determine if the medicine is helping.
In the meantime, she ask that I make another appointment with his allergist to do more allergy testing. Food allergies are thought to cause the inflammation to the esophagus causing EoE. She said she believes that he will be on the steroid long term.
However, being the stubborn anti-medicine freak that I am don’t agree…yet. I see a familiar pattern here unfortunately. When our son first started his rashes and eczema as an infant every doctor wanted to treat the rash. They didn’t put enough focus on what was CAUSING the rash…they prescribed lotions that are now off the market because they were causing Lymphoma in children. So my poor baby lived for eight months in pain and discomfort while I applied this cream when all that we needed to do was change his diet.
Many EoE patients have been put on diet restrictions with fantastic results…no medicine. My thoughts are that he is most likely allergic to wheat. I will have the allergist retest for certain foods and see what the results are. (he never really grew out of his wheat allergy, the test show that it lowered and doctors told me to reintroduce to his diet…no rash or hives occurred so we assumed that it was okay) Soooo…I will do more research and talk with more parents of children that also have EoE (that is where you come in) and gets results from allergists and see where we are in six weeks.
I know many of you are familiar with EoE and have traveled down this same path. What has been helpful for you and your children? Did you do a diet restriction or steroid treatment? Any problems with the steroid? Please share!