We finally received the results from our son’s second endoscopy in regards to his eosinophilic count.
The news I was hoping for. Decreased eosinophils. WOO HOO!! Happy dance, happy dance… 🙂
But, we’re not out of the woods yet. Let me go over with you what we’ve done so far and where we’re headed…
June 2012: Our four year old (who is already avoiding dairy, soy, egg, peanut, tree nut, legumes, green pea, and hemp due to food allergies) stops eating for two weeks. The only thing he is able to ingest are protein shakes. GI doctor prescribes antacid (Prevacid) twice daily and schedules endoscopy to biopsy his esophagus.
August 2012: First endoscopy performed to take biopsies of his esophagus. Results show increased eosinophils and he is diagnosed with EoE. GI doctor prescribes steroids (Budesinide) to be swallowed daily with 4 packets of Splenda (yuk).
October 2012: Our baby has a birthday and is now our five year old! Allergist appointment shows four additional foods to avoid via scratch test, banana, carrot, barley, and garlic. Now he will be avoiding dairy, soy, egg, peanut, tree nut, all legumes, green pea, banana, carrot, barley, garlic, and hemp.
November 2012: 2nd biopsy shows decreased eosinophils, less then 10. I request to stop steroids (wish granted) and schedule another endoscopy in January.
December 2012: Hope, pray, cross fingers, wish, be thankful, positive thinking, happy dances, meditate, and anything else you can think of until January… If counts stay low, we keep him off the steroids. If counts rise, we put him back on steroids and discuss avoiding wheat/gluten.
Do you or your child have EoE? I’d love to hear about your story.
What has your journey been like? Have you had 0 eosinophil counts just to have them go back up again? Have you ever been taken off the steroids? What foods have you avoided due to EoE? Please share with us. The more information we have, the better prepared we can be.